The Check-In

Checking In: MS Symptoms

What good is discussing diet and lifestyle changes if I don’t reveal the ongoing results?

Doing an honest self-assessment of any sort is hard, particularly when trying to find ways to manage an unmanageable disease. There’s a huge desire to make everything a “success” or engage in placebo effect-like thinking, but that isn’t always the case.

Overall, I feel like I am managing my MS better, but on a day-to-day basis, my mileage may vary because of various external factors.

Current Health Self-Check

Currently, I am not doing so well. Not necessarily because of the MS, but I have a weird seasonal head cold. Drippy nose, sore throat, and exhaustion. I can only assume that if a person without MS gets a cold like this they may feel wiped out but are able to go about their daily lives with minimal interference.

With MS and any illness, I get so wiped out that getting out of bed is a hardship. Ash had to stay home until Jai went down for his morning nap on Tuesday because I was so worn out. I needed the extra couple of hours of sleep this afforded me before I was able to start the day and take care of a toddler. Jai and I stayed in our PJs and read lots of books and minimized movement so I wouldn’t overdo it.

This is a key example of why getting sick with MS is “dangerous.” It won’t necessarily cause any physical harm, but infections are a key cause of flare-ups so there is a risk of needing to get steroids to treat the inflammation. I don’t get avoidant if I know someone is sick, but I do recognize that even a simple cold can knock me off my feet for a couple of days that might just inconvenience someone else.

Normally I wouldn’t write about getting sick factoring into how I am currently feeling because I tend to not get sick all that often, but since having Jai it has become a more common occurrence. 

Beyond the cold, I am feeling okay overall. There’s been some emotional disappointment in not being able to maintain my diet as strictly as I wanted, but doing what is best for my overall health is more important. My brain fog and memory issues haven’t gone away or lessened it, but that may be because I am not doing enough mental exercises to help stimulate neuron repair.

Fatigue is still an issue, but not so much on the days that I am more active. I find high-cardio days means that I have more energy throughout the day and days I do yoga there might be a greater dip in energy by the afternoon.

Being completely honest: I haven’t noticed many changes since my last check-in after my diet reset. I feel more active, happier, less sluggish, but no appreciable changes to my MS symptoms.

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The Check-In

Confession Time…

It’s the holiday season and that makes it very difficult to maintain any form of stick-to-it-tiv-ness when it comes to healthy habits. Exercising is harder with the colder weather and my running buddy is taking a slight break because of the holidays. It’s very hard to push yourself to get out of bed at 6am to go run in the cold.

Regarding my diet drops, I will admit I have lapsed. On a lot of things. Almost everything. Except sugar and fried foods. Sugar gives me such massive headaches that I can’t function for the rest of the day depending on how much I have and I think I have finally kicked the fried-food monkey. I don’t want to go through the psychological withdrawal again because of how difficult it was to get over.

I don’t consider any of this backsliding to be a failure. In fact, I consider it self-care. While I shouldn’t excuse myself for not meeting my personal goals, if I use this as a reminder that I can’t expect perfection and to be gentle with myself if I miss certain personal benchmarks, I won’t get discouraged.

Discouragement because of not meeting personal goals can spell the end of what is overall a positive and beneficial experience. I just need to maintain the mantra: tomorrow is another day and I can refocus once this “rough” period is over.

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Diet Shift

Week 5: Dear Dairy…

Dairy and I have always had a love/hate relationship.

I had issues with it as a baby and have always had mild issues with it as an adult such as mucus, gas, and feeling bloated. Nothing that affected my quality of life, but just a mild annoyance every so often.

My reactions to dairy tells me that I am most likely sensitive to it, but like with sugar, when it’s in your system it’s hard to notice.

Dairy has always been that difficult mountain to cross whenever I went vegan. The thought of going without cheese never appealed to me and vegan alternatives never tasted as good as slightly burnt cheese on a grilled sandwich.

I knew that there was a chance Jai would have issues with dairy. When I was a baby, I had a hard time digesting breastmilk and at the time, mothers were told to consume a bunch of milk when breastfeeding for the baby’s health. It never crossed my pediatrician’s mind that perhaps my mom should drop dairy from her diet to help me feel better. She switched to formula and that was that.

But when more information came out over the last few decades that dairy causes issues, particularly through breast milk, we put two-and-two together. So when it came time to breastfeed Jai, I watched my dairy intake.

I did notice that when I had a dairy-heavy meal, Jai was more uncomfortable that evening. When we started putting him on solids, if he had something that had a lot of dairy, he wouldn’t stay asleep due to discomfort.

That informed me that while correlation does not mean causation, it was something to pay attention to when deciding what to feed him. It’s easier to supplement his calcium needs with fortified foods outside of breastmilk. I am not against him having dairy once in awhile, nor am I against him drinking milk. But with all possible sensitivities, we will be doing it with care because I don’t want him to have unnecessary discomfort.

Ash reminded me recently that he had stomach issues growing up, issues with really painful gas. He wasn’t able to point to anything in particular, but he suspected that it was food related. Because there’s a possible genetic factor at play for Jai, we’re going to keep a really close eye on his reactions to certain foods.

I am dropping dairy not just for personal comfort, but because this is the last of the foods I am dropping for my cholesterol. I think there were some secondary benefits for my MS when I dropped dairy because dairy is inflammatory. I will be doing more research regarding that this week.

The Plan for the Week

  • I tend to reach for snacks that have dairy when I want to mindlessly eat. Having some carrots and hummus will be a good alternative.
  • Ash bought me N’ice Cream as a means to treat myself after my half-marathon on Sunday. I bought myself a nicer blender with some smoothie books, so when I am craving something with dairy, I will grab some “ice cream” or make a smoothie as a means to help with that craving. I made a banana ice cream the other day and it’s creamy enough to satisfy that specific craving.
  • I have found that sprinkling nutritional yeast over snacks helps a lot with cheese flavor. It’s not perfect, but it reminds me of parmesan. I can air pop some popcorn and throw the nutritional yeast on top if I want to taste something dairy-like.

The Social “What if’s”?

  • Eating in a restaurant: I am not going to stress over perfection, but opt for dishes that don’t have dairy or ask for the dairy removed. With salads, chose an oil and vinegar dressing. Still gotta avoid that fried stuff…
  • I am given something with dairy to eat/try: Defer if I can and if not, save it for later to give to Ash to try.
  • “Why aren’t you eating that?”: Trying to see if I feel better by going without dairy for a period of time. I have also noticed Jai getting more gassy when I’ve had dairy and I want to see if this will alleviate that symptom.
  • “Won’t you miss ice cream/cheese/eggs?”: Yes. I definitely will miss all those things, but current alternatives are better than ever and after a while you forget the difference.

For Wednesday, I will be examining how dairy can affect the body and see if what I have is a sensitivity or an allergy. Obviously, getting tested is the best way to confirm this, but sometimes that’s just not feasible for insurance. I think it will be helpful to see what dairy does to the body and see if that affects my MS as well.

 

Lifestyle & Blogging

From the Top

I have always jumped feet first into a new endeavor. It’s ingrained in my personality, something my mother will tell you I’ve always done since I was a baby. I wouldn’t say that I was willful, but it was very hard for her to stop me once I made my mind up about something.

I’ve hit some rough patches in my early adulthood that made me slightly reticent (I prefer to say that I am more mature), but I still hurtle into things once I decide it’s something I want to do.

Some examples: moving to Georgia from Connecticut; meeting my future husband; going to graduate school; starting this blog: these are all things that I jumped into because it seemed like a good idea and darn-it, I’m doing this thing.

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