a-test-in-resilience

A Test in Resilience

I am not complaining when I say it’s been a rough couple of months for me. I am just stating a fact. I lost Lytton, re-started a DMT with unexpected side effects, and recently dealt with a training setback. It’s been a test in resilience from October 2019 to February 2020. I think I am passing, but I am still in the middle of it, and I know my perspective may be wrong.

Initially, I planned to make this post about my running. I entered two marathons for 2020: one in March and November. The March marathon would be my first ever, after several years of running multiple half marathons. I made it a goal to qualify for Boston, my college hometown, despite my MS.

#GOALS

Qualifying for Boston is a multi-year goal. I am not fast enough at this point, and I am only able to get myself down to 9:15 minute miles for 3.1 miles. I need to get myself down to 8:09 or faster for 26.2 miles to qualify. The first step is to run a marathon to see if I can even run one, let alone train myself to such speeds.

Granted, training to those speeds wouldn’t be awful even if I never qualify for Boston. It’ll put me into competitive waves with local races, and gives me a healthy fitness goal. 

I chose a March marathon for my first because it’s the last of the season, locally, until the fall due to Southern temperatures. It was deeply symbolic because I ran my first half marathon at this race in 2013. It’s also a day before the 2020 Olympic trials. All signs pointed to this being a perfect test run on whether I could even finish a marathon.

But by mid-January, I recognized that I was in the middle of a massive setback, and I needed to listen to my body.

Running as Disease-Modifying Therapy

Before I delve into the first setback, I want to talk a little bit about the importance of running to me. I mention it in passing on the blog because I am of two minds about it. On the one hand, I recognize how fortunate I am to be doing it with MS. I know not everyone has the same freedom of mobility I do. I want to be sensitive to that. On the other hand, I want to show that mobility-impairing diseases, like MS, don’t have to stop you from being physically active.

I try to walk a fine line between being sensitive and promoting healthy living. This year, I wanted to explore what running means to me as I train for a marathon and work towards a balanced life with complementary therapies.

Running is my primary form of managing my MS. It is the umbrella that all my care falls under, whether it’s eating or stress-reduction. I am chasing a goal of getting faster in my races; therefore, I make healthier eating choices to fuel my body appropriately. The act of exercising lowers my stress and gives me meditative moments when I am alone. Running helped get me to a physical space where I think Tecfidera will be more effective.

I credit running for balancing my mental health. I know this isn’t possible for everyone, so I acknowledge my privilege. But once my mental health stabilized, I was able to make other changes in my life that benefited how I managed my MS. It is a form of disease-modifying therapy for me.

And then I experienced my first setback.

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Sugar and Chronic Illness

This post was originally published in October 2017. I’ve updated it to include a follow up since the original publication. Find my thoughts on sugar and chronic illness under my update.

2019 Note: This was a check-in post relating to a series of diet changes I made. Because I was breastfeeding Jai, I could not take my MS medication until I finished. I wanted to find a way to manage my illness until I restarted my medication.


Cutting sugar went smoother than I expected, though there were a few days where I was irritable, according to Ash. I refuse to believe him, but deep down, I know he’s right. No longer having that emotional crutch makes for a very grumpy me.

Psychologically speaking, it was a lot easier than I expected. As long as I didn’t have sugary treats in the house (I tossed all of our sweets or sent them with Ash to work); I avoided buying sugary drinks (everyone knows that my weakness is a good Pumpkin Spice Latte in the fall). If I had fruit for any sweet cravings, I was good to go. Every time I drove by a Starbucks, there was a temptation to pull in and just give in to that PSL craving, but I made sure to keep going and have a few bites of pineapple as soon as I got home.

A couple of times, I did eventually stop at Starbucks, and I made sure only to order an Americano. Before I was pregnant, I was in the habit of drinking all my coffee black unless it was a latte. It wasn’t hard for me to get back into drinking with nothing in them. I think it helped a bit too.

Coffee is a wonder drug (and sadly, probably something I need to add to my drop list), and can make a lot of things better.

I didn’t notice any headaches, though, at the beginning of the week, I was more sluggish and in need of an extra nap or two during the day. By the time Ash came home from work, I was very ready to pass Jai off to him, so I could lay down and not think or move for an hour. By day 3 or so, I had a little more energy, and by this morning (day 5), I had even more energy to do my running around without the need for a nap.

I also noticed that during my long run on Thursday, I was able to keep up with my mom and felt less fatigued at the end of it. I also felt motivated to go again this morning (though that would be off schedule). Me? Motivated to run off schedule? This really is unheard of – I hate running.

While shopping, I made sure to review all the labels like I said I would: any time it was High Fructose Corn Syrup or unidentified form of “sugar,” I would move along. From my research, they said that sugar is hidden in everything, and it really is true. Sugar is everywhere. Foods that I usually love to eat, like certain types of crackers or even grab-n-go frozen meals…all contain sugar. I also made sure to avoid agave and honey. If the item were sweetened with fruit juice or dates – I would be willing to grab it to consume.

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Veganism and Me

This post was originally published in November 2017. I’ve updated it to include a follow up since the original publication.


2019 Note: This was a check-in post towards the end of a series of diet changes I made. Because I was breastfeeding Jai, I could not take my MS medication until I finished. I wanted to find a way to manage my illness until I restarted my medication.

One week of the vegan diet down and going strong. It’s difficult to tell if there’s a difference in my energy level while I am still fighting this chest cold. Still, I do feel like my mood is relatively calm and mellow.

I am anticipating that once I start feeling better that I will notice a spike in my energy levels. After my first flare-up, but before my diagnosis, I went vegan for a few months. I found it as a natural energy booster while I wasn’t consuming caffeine. I expect the same results because I am eating similar to before, if not better, because I am not eating sugar or junk foods.

I am finding that I am craving meats and STILL craving fried foods. While I am not craving beef or pork, I am craving chicken and salmon, mainly fried chicken and fries. I still haven’t indulged in my fried food cravings, but I am astonished at how much harder it’s been to drop those foods. I expected sugar to be the hardest for me to remove from my diet with the cravings, and it hasn’t been.

I occasionally feel sorry that I can’t indulge in sweet treats, especially in the fall, but what I wouldn’t give to have some salty fries right now. Or onion rings. Or mozzarella. Or some sort of fried chicken skin…

I found some puffed veggie “fries” that work as a snack, and I’ve been making homemade microwave popcorn for idle snacking at night. I am going to try baking some fries or a vegan version of twice-baked potatoes. I think either of those might help satisfy my cravings.

Next week is the penultimate food removal and going to be the most difficult with functioning in the real world: gluten.

Overall Health Update

Getting on the scale this morning, I have officially lost 12 pounds from when I first started this journey. It was never about weight loss, but to see that this morning was a huge confidence booster. Hopefully more of it will melt off as I eat healthier and healthier and keep running. Once I finally hit a bottom with the weight loss, I will reveal official numbers.

2019 Health Update

It’s interesting how things come full circle. I maintained the vegan diet through the end of 2017 and into part of 2018 but found it unsustainable when I dropped gluten as well. I re-introduced eating dairy, meats, and gluten and never noticed that energy boost. Still, I suspect it had more to do with not maintaining as balanced of a diet as I intended.

In April of this year, I went vegetarian again and transitioned back to veganism in June. My reasons for transitioning back to veganism had less to do with health, though that was part of it. It had more to do with ethical reasons and being mindful of my overall environmental impact. This time I was more conscious of my diet, especially with all the running I’ve been doing. Since transitioning to vegan in June (but still eating gluten), I’ve had more energy and feel better overall.

I indulge in junk food, especially after several days of intense running training. I just ran an intense half marathon, so one of the first meals I had was a plate full of fries. I maintained the attitude I was going for back in 2017, and that is to embrace moderation.

I still firmly believe making dietary changes have helped me manage my MS while off medication. I won’t say it was any one thing, but rather, being mindful of my eating and ensuring it was balanced. If you could call my eating habits anything, it’s mostly clean eating with the occasional fried/unhealthy indulgence.

As to the weight mentioned at the end of the post, here is the official number reveal I promised. I was 164lbs when I started my journey in September 2017. When I wrote this post in November 2017, I was approximately 152lbs. According to the BMI standards, I was still considered overweight. At my most recent weigh-in, I am down to 130 lbs. This puts me solidly in healthy weight territory.

Two different races, two years apart.

I suspect losing nearly 60 lbs (I was 186 at my highest when pregnant with Jai) helps manage my MS. I don’t know if this is true, but I do feel better overall because of it. I understand this isn’t something everyone can do, especially with a debilitating autoimmune disease, but if you have the means to lose weight, it is worth trying. 

I wanted to revisit this post since I wrote it exactly two years ago, and it was interesting to see what changed and what stayed the same. It’s not often I think of taking the opportunity to see my personal growth.


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December: A Month of Giving & Compassion

This December…

December is when we open up our hearts for people we know and the strangers we encounter. It can be hard to do so sometimes, but I find for myself, it can be especially rewarding to reach out to others. Seeing Jai exhibit tender moments of caring for people outside of himself is also rewarding and something I want to foster as much as possible.

Throughout this past year, I discussed the importance of generosity and compassion. Rather than re-write what I’ve already written, I am re-sharing some of my favorite posts on these two topics.

At the end of the month, look for my reflection on how I think my 2018 transpired with all the internal and external changes I’ve made.

Introducing the 2019 Newsletter

For 2019, MS Mommy Blog will have a weekly newsletter. I will be switching back to my three posts-a-week schedule, but on Fridays, my third post will appear only¬†in the newsletter. The newsletter will include access to free printables, recipes, fun articles relating to the week’s theme, a 2019 challenge, and other exciting things that I want to share with my readers.

To make sure you don’t miss a thing, sign up for my newsletter below. I promise to only send you one email a week.

Subscribe to the 2019 Newsletter

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Featured photo credit: Michelle Melton


A Month of Gratitude

With Halloween behind us, it’s time to look ahead to Thanksgiving and the whole upcoming holiday season. On Thanksgiving, while I don’t spend a lot of time meditating on things that I am thankful for, I do try to spend a few moments remembering the purpose of the day and express gratitude internally towards my situation. I recognize that I have a lot to be grateful for and I probably don’t spend enough time appreciating all of those elements in my life.

I decided that rather than spend the month discussing things to do around the home and things to do with children for the Thanksgiving holiday, I would use each post to explore some element in my life that I have gratitude. I may have consciously acknowledged this gratitude in the past (internally or externally) or this might be my first time really exploring the topic on a concious-level. It will make for an interesting series of posts that will range from superficial stuff to more complex parts of my life.

The purpose of this month-long exercise will be to increase my awareness for all the stuff in my life that I am and should be grateful about. By doing this, I will be more present in my own life (rather than focusing on the past or what might happen in the future), see increased health benefits, and increase my level of compassion for myself and others. Read about the researched benefits of gratitude here.

I think this will also help get me more into the holiday season as well: these last few years I’ve found it rather difficult to feel gratitude or want to celebrate despite having Jai in my life. I have worked hard this past year to take steps towards self-improvement, so spending some time focusing on the changes I’ve made and appreciating everything about the changes and my life is important to continue forward.

With each post, I will invite readers to take a few moments to find their own elements of gratitude in the same area of their life and either share it in the comments or share it with whoever should hear it.

It will be an interesting journey for November to be sure.


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Featured photo credit: Michelle Melton