a-typical-day-with-MS

A Typical Day with MS

MS is a disease where each person’s experience is different from another’s. With three different types of diagnoses, Primary Progressive Multiple Sclerosis (PPMS), Relapse-Remitting Multiple Sclerosis (RRMS), and Secondary Progressive Multiple Sclerosis (SPMS), the disease can behave differently from person-to-person. Within each type, there are a variety of symptoms that may not be experienced by each person. A typical day with MS will vary, but I wanted to spend today’s post discussing mine.

A Typical Day with MS

If I am in half-marathon training, then I will get up with the alarm clock really early. I typically get 5 – 6 hours of sleep which I know is not enough, but it’s hard to go to bed immediately after putting Jai to bed. I want to spend time with Ash, so I don’t get to bed until 11pm most nights.

My mood and energy are generally fine on these mornings. I keep my exercise gear set out so I don’t fumble looking for it. This allows me to sleep as late as possible before making the 15-minute drive to run with my mom.

After my run, I have to rush back home so Ash can leave for work on time. I will be full of energy at this point, but I start my first cup of coffee for the day. I probably drink 3 – 4 cups of coffee throughout the day and at least one cup of black or green tea in the afternoon to keep my energy levels up. I definitely do not drink enough water, which may be hindering my energy levels in its own way.

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Good for the Nerves: Fall & MS

MS is a disease that’s affected by the weather, particularly extreme temperature variables. Summer and wintertime can be particularly rough because of the temperature swings on either end of the thermometer. The temperate or more moderate weather of the spring and fall can offer some relief for those who need it.

I know that for myself when it’s a consistent mid-70’s with low humidity, I am at my most comfortable. I find that I have more energy, able to sleep better at night and find the need for a midday nap to be lower. I still need naps because I have an energetic toddler, but I can skip the nap with minimal impact on my evening energy levels.

I know that my MS situation is different from others, so what is comfortable for me to function may be uncomfortable for others. That’s the unfortunate truth about MS – while fall is the ideal season for me to be my best, it can make others miserable. If fall isn’t your season, that’s okay because there’s bound to be another season that works best with your illness.

Fall Weather & MS (in the South)

All of this is to say that the fall weather makes me happier. I feel like we get more temperate days in the fall than we do in the spring, though if I looked at the temperature statistics I am probably wrong.

In the South, fall means that while we may still get 90-degree days, it feels like the day’s heat dissipates faster in the evenings and takes longer to be oppressive in the mornings. It also brings more rain during the hurricane season, which is less helpful because of the humidity, but ideal in keeping temperatures lower.

More Activities to Keep Moving & Healthy

As discussed on Tuesday, fall festivals are a great way to get out and enjoy the outside with family and friends. Going on hikes, particularly in the South, are more pleasant because the leaves haven’t dropped just yet, so there’s enough shade from the sun in the forest.

Walks are more pleasant to take in the evening, more importantly, less of a mental hassle when you don’t have to consider bringing a bunch of cooling supplies to keep from overheating (for me: ventilated shoes, water, and a hat).

As a runner, I find that some of my best personal records happen between the months of October and April because of the milder weather. I also don’t run into the issues of dehydration headaches after a race that I get in the hotter month. I get these headaches no matter how much I hydrate before, during, or after the race.

If physically able, yardwork is less oppressive as well. Raking leaves is a great cardio activity to get moving, as is trimming bushes.

While hydrating is still extremely important for those of us with MS, I find that it’s not as imperative as it is in the hotter weather. I also find my means of hydrating open up: I am a huge tea drinker and love drinking herbal tea in the fall. While drinking straight water is always recommended, drinking herbal tea is easier to swallow than straight, boring water.

Relaxing Atmosphere: Less Stress, Less Flare-Ups

Scientifically speaking, fall is a more relaxing time of year: we’ve been conditioned to enjoy it at least in the United States. Fall elicits cozy feelings, warmth, and togetherness ahead of the holiday season. The idea of sitting by a fire pit with a cup of mulled cider, a blanket, and good company is extremely relaxing.

My happy place is Pumpkin Spice Lattes which are a huge indicator of fall. That first sip of the year always relaxes me in the  “ah, fall is finally here” sort of way.

Stress is a huge factor for flare-ups, at least for myself, so having relaxing evenings helps minimize my stress. Any stress that comes during the fall is usually the kind I enjoy, i.e. planning gatherings, parties, events, and outings.

While my first flare-up happened at the beginning of December nearly six years ago, most of my flare-ups happen in the winter and summer months. I think because I have worked hard to make fall a relaxing time of the year for myself.

If you have MS or a chronic illness that is affected by the weather, what do you do to help manage it during your favorite seasons? What is your favorite season and why? Leave a comment with your thoughts below.


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Featured photo credit: Michelle Melton


Benefits of Light Exercise

Getting motivated to exercise after a prolonged winter is hard.

This has been a particularly difficult year in the United States, as we’re experiencing another cold snap in April which is unusual in the Southeast. Engaging in outdoor activity is discouraging when you have to bundle up like it’s the middle of winter.

There are ways to work with the cold weather and kick-start exercising even on a minimal level to help restart those resolutions. Light exercise tends to be discounted in favor of moderate or vigorous exercise, but it does have its health benefits if that’s all you can do.

Taking a few moments to shake up the daily routine, no matter your time or fitness level can go a long way towards becoming healthier.

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Checking In: MS Symptoms

What good is discussing diet and lifestyle changes if I don’t reveal the ongoing results?

Doing an honest self-assessment of any sort is hard, particularly when trying to find ways to manage an unmanageable disease. There’s a huge desire to make everything a “success” or engage in placebo effect-like thinking, but that isn’t always the case.

Overall, I feel like I am managing my MS better, but on a day-to-day basis, my mileage may vary because of various external factors.

Current Health Self-Check

Currently, I am not doing so well. Not necessarily because of the MS, but I have a weird seasonal head cold. Drippy nose, sore throat, and exhaustion. I can only assume that if a person without MS gets a cold like this they may feel wiped out but are able to go about their daily lives with minimal interference.

With MS and any illness, I get so wiped out that getting out of bed is a hardship. Ash had to stay home until Jai went down for his morning nap on Tuesday because I was so worn out. I needed the extra couple of hours of sleep this afforded me before I was able to start the day and take care of a toddler. Jai and I stayed in our PJs and read lots of books and minimized movement so I wouldn’t overdo it.

This is a key example of why getting sick with MS is “dangerous.” It won’t necessarily cause any physical harm, but infections are a key cause of flare-ups so there is a risk of needing to get steroids to treat the inflammation. I don’t get avoidant if I know someone is sick, but I do recognize that even a simple cold can knock me off my feet for a couple of days that might just inconvenience someone else.

Normally I wouldn’t write about getting sick factoring into how I am currently feeling because I tend to not get sick all that often, but since having Jai it has become a more common occurrence. 

Beyond the cold, I am feeling okay overall. There’s been some emotional disappointment in not being able to maintain my diet as strictly as I wanted, but doing what is best for my overall health is more important. My brain fog and memory issues haven’t gone away or lessened it, but that may be because I am not doing enough mental exercises to help stimulate neuron repair.

Fatigue is still an issue, but not so much on the days that I am more active. I find high-cardio days means that I have more energy throughout the day and days I do yoga there might be a greater dip in energy by the afternoon.

Being completely honest: I haven’t noticed many changes since my last check-in after my diet reset. I feel more active, happier, less sluggish, but no appreciable changes to my MS symptoms.

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Checking In: Coping with Personal Stress

Disclaimer:  I am not a medical professional and none of these statements have been reviewed by one. What is my personal experience and observations may not be the same for another individual.

Read my full medical disclosure policy here.


Today a major milestone in my health journey. Five years ago, I had my very first MS flare-up. At the time, I didn’t know what it was, but I was lucky enough to get answers less than a year later.

Today’s post contains a more in-depth tale of my journey to the MS diagnosis and what brings about my flare-ups. Read the shorter version here.

2012: The First Time

A few days prior to my flare-up, I finished up my final classes, got my grades in, and flew up to Connecticut to help my parents move. As an only child with one year of marriage under my belt, my parents wanted to leave the cold hollows of New England and join Ash and me in Georgia.

This was a particularly hard journey for me because it meant that I would be saying “goodbye” to my childhood home. We moved in when I was 6 and I had many fond memories stored inside; there were over 20 years of memories and I was extremely sad to no longer have the ability to visit it.

December 13th would be my last night sleeping in my old room, and on the 14th I would help my parents finish loading up the moving truck and help them drive down to Georgia over the next three days.

I was not in a good mood. I was grumpy, irritable, but most of all, stressed out.

It was my second year teaching college students composition, struggling with normal Graduate school stressors, and now the final stress of losing what felt like a family member was too much for me.

But there would be more.

On the 14th, a little more than an hour away from my location, Newtown happened. I had to keep it together to help finish the moving process, but inside I was really struggling with all of my feelings. I had a tight burning in my chest as I swept and mopped the living room floor. I had to keep everything together.

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The product of my labor: a clean living room floor. Possibly the only time I did this chore in this house.

We loaded up the truck around 6pm, my mom and I hopped in her car, and we headed south while my dad followed in the moving truck. We were headed towards Pennsylvania where we planned to stay for the night at a motel.

I slept on a pullout bed which was extremely uncomfortable. I was exhausted, so I didn’t think much about the day’s events, and I fell asleep.

When I woke up, there was an oval spot in my right eye’s field of vision. I had a slight headache and I was feeling unwell. At first I thought my glasses were dirty, but no matter how often I cleaned them, that spot wouldn’t go away. I rubbed my eyes thinking there might be some junk with no luck. I didn’t understand what was happening as we went to get breakfast at the local McDonald’s.

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Found on the restroom door of that McDonald’s. Even with the spot in my eye I could see how dated this was…

I had had migraines before, but I never experienced an aura prior to the migraine. Normally I would not have a migraine and then boom, migraine without warning. My migraines were increasing in frequency. I would have one once a year and I was starting to get them every 6 months or so, so when I looked up my eye symptoms, it seemed like a natural progression.

Figuring it was an aura, I was relegated to being the navigator when I didn’t have a black skull cap I bought at a gas station over my eyes to help manage what I thought were the beginning moments of a migraine. When we stopped in Virginia for the night we all thought the spot would go away with a good night’s sleep.

It did not. In fact, it got worse. It didn’t cover my whole field of vision, but it was more prominent. The day before, I could kind of see through this smudge. Now it was a translucent spot that partially blocked objects.

I was definitely scared. I didn’t know what was happening and how to fix it.

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