MS Mommy Blog

For the month of November, I am taking each day to highlight some element in my life that I want to express my gratitude about. This could be something deeply personal or just a passing appreciation for something more superficial. 


In my final post focusing on things I am grateful for, I wanted to spend some time talking about the blog itself.

I started the blog back in September 2017 without any real plan or fully formed goal in mind. I just wanted to have a space to discuss my healthy living plans and how it worked out for me, but with no real long-term intentions. While I still consider this blog in its early stages, it’s refocused into something more: space where I can talk about my MS, my healthy living goals, and an honest discussion of my self-improvement journey.

As I enter my second year of blogging, I’ve come up with more concrete goals and plans to re-focus the blog into something more meaningful and deeper purpose.

This blog has helped me to maintain my sense of self and reconnect with a childhood dream and for that, I am grateful for the blog’s existence.

Childhood Dreams

When I was a little girl I watched the Wonderworks Anne of Green Gables over and over again. I wanted to be exactly like Anne Shirley, a writer when I was older. In my mind, I would be a fiction writer of some sort, the dream evolving into the direction of a fantasy author similar to Martin or Eddings. With that goal in mind, I focused my education so I could become a writer, I took a bunch of creative writing classes in High School, got my undergraduate in creative writing, and when I went to graduate school, chose literature so I could teach for a living and write in my spare time.

Life, as I have said many times in my posts, got in the way and caused me to get sidetracked. I felt worn down and defeated when it came to my writing because I felt I was never going to be good enough to get published. I had ideas, I felt like I had some talent, but I couldn’t compete with what was out there. The market evolved and changed from my childhood and the need for novelists diminished. Those in the field had to be good. I didn’t believe I would ever be good enough.

Graduate school didn’t help because it re-trained my creative writing and focused on the academic-bend. This made my writing and writing process clinical and focused on the technical aspects of writing. No longer could my writing be organic, but it had to be planned out. It did, however, help train me to write under the pressure of a deadline. I am grateful for that.

Best Laid Plans…

I just assumed that my dreams of becoming a published author were just that: dreams. I would end up teaching until I retired and then I would reconsider writing as a second career.

I defined “being a writer” on the fiction side of writing. To me, while I am a fan of non-fiction authors like David Sedaris, a writer was someone who published fiction novels. I wanted to be like Anne Shirley and get a novel published. Fiction writer. Next “great American novel.” That sort of thing.

My ego wasn’t lacking.

So any other writing I did outside of fiction didn’t count in my mind. I viewed my blog writing similar to my academic writing: very clinical with some points here and there to make it more interesting, but not really writing. It wasn’t until a conversation Ash had with me a few months ago that it clicked in my head:

Ash: You’re a writer.
Me: What? No. No, I am not.
Ash: Yes you are! What are you doing?
Me: Writing.
Ash: And…
Me:…
Me:…
Me: I suppose it does count.
Ash: Of course it counts.
Me: Huh. I guess I am a writer.

It wasn’t a loud “aha” moment, more of a slow realization. Ash was right, I was a writer. I have been writing several thousand words a week, writing even more than I did in graduate school. More than when I wrote on my own in my youth. I was writing for myself and what I wanted to write about and that made a huge difference.

I had realized my childhood dream of writing for a living even if it took a different route and form I originally anticipated. That doesn’t mean I can’t spend time working on my more creative pieces, I can foster that on the side. But I can officially say that I am a writer because of my blog.

A Creative Accountability Buddy

What MS//Mommy has done the most for me is keeping me accountable to my plans and goals. I post about what I want to do health-wise and I find that knowing it’s out there helps keep me honest and focused. When I slip up, I try to post about it, but I feel like I am less likely to slip up because I have put my intentions out there.

I like to think that my continued health journey success is in part due to my activeness on the blog.

I also find that the blog helps make my intentions more real, like writing down items for a shopping or to-do list. If I put it to “paper,” then I have said that this is important for me to be more mindful. After finishing up my two-part post about toxic relationships, I’ve made more of an effort to be okay with no longer allowing toxic people in my life.

My posts about coming to terms with my MS helped me move forward in a more constructive way. While I was in a much better place than when I first got my diagnoses,  speaking about it put any final fears or doubts I had to rest.

Beyond all of that, just the creative act of writing has been extremely cathartic for me. It has allowed me to have a sense of self and self-worth that I was worried I might lose once I became a mother. It is easy for a woman to be defined solely by her children, and I was worried I would get too wrapped up in Jai’s life.

I love my son, but I don’t want to be defined by him. I have nothing against other parents who allow that to happen, that is what works best for them.

I am able to say that while I am a mother I am a writer as well.

The Future

I am hoping that my blog will continue to grow and that it will take on a greater meaning for others and not just myself. I am also hoping it will help open up professional avenues I never imagined possible when I started out last year.

I feel like I’ve been less stressed in my life since starting my blog and for that, I am grateful to have in my life. Any stress I feel related to the blog is the good kind of stress that pushes me forward and keeps me motivated. I can’t wait to see where this takes me in the next five years or so.

Thank you for coming along this journey with me.


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Featured photo credit: Michelle Melton


Day Trips: Bringing along Toddler

The idea of bringing a little one along on a day trip is daunting.

Where to go that will capture their interest, what to bring, what to do…

No longer can the carefree couple be truly carefree. A lot of planning goes into the whole process of taking a day trip when bringing a little one along.

That said, taking a day trip with a little one isn’t impossible, nor is it difficult to plan. It just takes a little extra prep the first couple of times and once everything is in place, it should be a breeze each time you want to take a trip.

Prepping a “Go Bag”

The quintessential item that should come along each trip, besides a diaper bag, is what I like to call a “go bag.” This bag is filled with books, toys, activities, and snacks that are age appropriate and “special” because they solely reside in this bag and aren’t for play at any other time.

I try to swap out a different and legitimately new toy each time to keep the bag somewhat fresh, but only if I have the time to pick something up. If not, the novelty of the bag tends to be enough.

In Jai’s Go Bag:

  • Small pots of non-toxic “dough”
  • Water marker and activity set
  • Several small figurines
  • Wooden noisemaker (that isn’t too obnoxious for us)
  • Wooden car
  • Special stuffed animal
  • Pipe cleaners
  • Stickers
  • Board books
  • Flashcards
  • Stretchy string ball
  • Non-perishable snacks that can sit between trips without going bad (and easy to use in the car)

I try to keep everything tactile in nature at this point because Jai is very touch-oriented. As he gets older, I will probably switch in some books and more activity sets that are easy to handle in the car.

As a last resort, we bring a tablet pre-loaded with some of Jai’s favorite movies so we can hand it to him if he is unable to occupy his time with everything in the bag. This is especially ideal for air travel where we’re in confined spaces and loud noises.

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MS Awareness Month…Final Thoughts

As we finish up MS Awareness Month I wanted to reflect on some thoughts that came up throughout the month.

I found this month to be deeply meditative because it forced me to confront some unresolved conflicts with my diagnosis. While I’ve moved into the acceptance stage with my MS diagnosis, there was some information that I ignored throughout the denial stage that I resolved this month. I had avoided, up until now, to learn the truth about the minor details.

It also forced me to consider how to have the MS conversation with Jai. While he’s too young to understand what MS is, being prepared to have the conversation will keep it natural and hopefully not overwhelm either of us.

I have been overwhelmed by the response to this month’s most popular post: “The first few days…” I honestly hadn’t expected this post to be popular. It was the hardest post to write, I worked on it for about two weeks because it emotionally put me back in the days right after the diagnosis. Those were some dark days, but I was able to pull them to have brighter days and feel more hopeful about my future.

I am hoping that its popularity meant it resonated with others and will provide some measure of comfort during those darker times.

Overall, this month was a difficult one to blog through because many of the posts required a level of emotional and mental fortitude I hadn’t expected. I poured a lot of myself into these posts and I am deeply grateful for the positive responses I’ve received from my various social media accounts.

But this was a wonderful month, it allowed me to feel connected to the MS community on a deeper level and amazed at all the strong fighters in my ranks. I conquered my third half marathon and have had the opportunity to work with some other extremely talented bloggers. Overall, this month was a success.

And remember, MS can’t catch us.

MM-MSMommy-tshirt-blackandwhite


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Compassionate Parenting: Mindfulness and the Child

This is the second week in a 3-week series on parenting observations. Week one is based on gentle parenting, week two is about parenting with compassion, and week three is about parenting with a disability.

These posts are based on my personal experiences as a parent and are not meant in any way to judge other parenting styles or decisions. I am offering my personal research and conclusions as possible suggestions for others out there, therefore these posts will be as objective as possible. When it comes to parenting: provided the method isn’t abusive, there really isn’t a wrong way to parent your child. Be secure and do what works best for you and your family and ignore outside judgment.


Being a parent or caretaker requires a level of compassion that is almost second nature from the beginning. It’s as if when the child is handed over, they also hand over the inherent tools needed to be loving, compassionate, and caring for the little one.

Just kidding. That’s the narrative we’re told when we’re about to become parents.

That isn’t actually the case: it takes time to fall in love with this new human being. While some things do come naturally, being compassionate may take longer to foster and that’s okay. Compassion isn’t given, it’s developed through a lifetime of experiences.

Going several months with sleep deprivation makes it hard to want to understand what’s going on inside the little one’s head, but it’s something to consider, especially when they won’t stop screaming.

In a child’s ugliest moments, it is important to see things from their perspective to better serve their needs. As with Gentle Parenting, this isn’t about being permissive, but finding ways to use available parental tools in the most effective way.

Nota bene: This post will be using the universal “you/second person” pronouns throughout, so while it may not speak to your experience directly, it may apply to someone else you know.

The Difficulties of Growing Up

Understanding babies and toddlers is a rather foreign concept. As adults, we are furthest away from them developmentally as possible. Teenagers can be easier to understand, if only because we may have recently come out of that developmental stage.
Toddlers have a difficult life.
As silly as that sounds, it is true when looking at things from their perspective. Several years ago, before I even thought of having Jai, I read a post about how hard toddler’s have it. I haven’t been able to find the exact article, but there are others out there with the same concept. It talks about life from a toddler’s perspective and speculates what they might be thinking.
Life From a Toddler’s Perspective:
  • You can understand most, if not all, of the words spoken to you, but you have limited ability to respond in a way that your caretakers understand. Certain noises or actions will elicit responses, and while they may not be an effective way to get your needs met, it gets the ball rolling.
  • You rarely have a say in anything. You could be playing with a toy, watching your favorite show, eating your snack, and your caretaker picks you up and asserts their will on you in some manner. Moves you to another room. Straps you into a chair. Changes your diaper. You did not want or ask for any of this.
  • Once more: you don’t have a say. There’s food put in front of you and you don’t like the taste or are bored with it. But your caretaker won’t let you out of your chair until you consume an arbitrary amount. You are put in your crib for a nap, but you don’t feel tired and don’t want to be left alone.
  • Rules are abstract concepts. You want to explore and try everything now that you are mobile, but every time you get close to something interesting you get yelled at or moved. You eventually get that something is “no,” but that’s a “no” in the moment and may not be a “no” in a while. So you want to test to see if there’s consistency.
  • There is no concept of self-preservation. You can walk and you see your caretakers go down stairs, why can’t you on your own? Now they get upset when you venture too close.
  • There is no concept of ownership. Everything your caretaker has is yours and everything of yours is yours and everything the other little human you’ve been brought to see is yours, and now there’s crying and you don’t understand why your caretaker is being stern with you for taking that toy.
  • Emotions are new and shift everyday. You don’t understand what they mean or why you feel this way. The only way to feel better is to have an outward release of those emotions by yelling, crying, or throwing something because why not? This causes your caretaker to react in ways you don’t understand.
  • In the same vein, learning happens all the time, but you don’t understand your limitations. You see your caretaker do something or an older child do something that you want to do, but you aren’t able to do it in the same way when you try which is very frustrating.
The list can go on and on, but the point is made: it’s difficult to be a toddler when it’s hard to understand what is going on and you don’t have the tools to manage it.
Keeping these ideas in mind when dealing with a little one will help raise personal awareness and compassion for your child. Essentially every part of being a toddler is frustration, from not being able to understand to not being able to manage emotions. When they are throwing a tantrum or being resistant, it’s nothing personal to the caretaker, it’s because they are incapable of managing their feelings the way adults have been trained to do.
Therefore when confronted with a toddler’s frustration, the adult can take a step back and be compassionate to what might be upsetting their little one.

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