2019-MS-Awareness-Month

Highlighting MS Symptoms

Normally this post would be for newsletter readers only, but for MS Awareness Month, I am making it available to all readers. Don’t miss a single post! Sign up for the MS Mommy Blog Newsletter today! It’s never too late to join the 2019 Wellness Challenge.


In Wednesday’s post, I highlighted a typical day with MS for me. I didn’t go into much detail of what it was like with each of my symptoms, but I wanted to spend the rest of the month focusing each post on a different symptom I’ve experienced in my MS journey.

The hope is to normalize my experience, both how I felt when I first experienced the symptom, and how I dealt with it. Obviously, what works for me may not work for everyone, but I want to highlight that even in the darkness can there be light.

Symptoms that will be highlighted for the rest of the month: fatigue, numbness, memory fog, Optic Neuritis, stress as an exacerbator, and working through recovery. Each Friday, in the newsletter, I will discuss the way I handled dealing with the symptoms highlighted during the week, so please sign up for the newsletter to read my experiences.

Please contact me if you don’t see a symptom discussed and want to see it highlighted in some way this month.


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Importance of Self-Improvement and Chronic Illness

Chronic Illness & the Importance of Self-Improvement

Why is it important to consider self-improvement if you have a chronic illness?

There’s no real easy answer because everyone’s situation is different. For some, every day is a chore to get out of bed and just manage the disease. The thought of making positive changes in life is a luxury.  Wrapping one’s head around life-changes can be overwhelming because life-changes implies big goals and grand changes.

But, what if I said it didn’t need to be? That perhaps we are all too focused on the implied definition of self-improvement rather than its actual definition? A definition that simply means making personal changes.

That’s what this year is about: acknowledging that taking the time to make minor changes in a positive direction is just as meaningful in the desire to self-improve as making the bigger ones.

Today, let’s reshape our definition of what is self-improvement into something more manageable. More meaningful and more personal.

Altering Our Impressions

In the Western world, self-improvement or self-help is heavily marketed to consumers. If you had a TV as a child, you’ve grown up knowing that around this time of year commercials promoting diets and weight-loss supplements increase.  Read magazines? Ads and articles abound about the various ways to improve your life.

Daily, there are subtle and not-so-subtle ways for the industry to pull you in and want to make changes so you can “live your best life.

Many of these offers come with the caveat: “you can only make these improvements if you buy x,y, z book.” Which leads to a near $10 billion industry.

Does that make self-help/self-improvement a scam? Not necessarily, but you have to be mindful of who you turn to for help. There are scammers that peddle modern-day snake oil and scientifically unsound therapies, but there are plenty of legitimate options to guide a user through the process.

That said, self-help is an industry. Therefore it’s in the industry’s best interest to keep consumers coming back month-after-month; year-after-year. If it feels like self-improvement goals always seem so big, i.e. “I want to lose 50 pounds in six months!” or “I am going to do something new and exciting every day this year!” that’s because there’s this nebulous goal-making process that does very little to encourage participants into smaller and more manageable goals.

There are some programs that encourage breaking goals down into more manageable chunks, but unfortunately, they aren’t as loud as a reality star on TV telling you to buy their product for massive weight-loss. Or the social media influencer who shows off how perfectly they are meeting their self-improvement goals.

If you have a chronic illness, seeing these examples can be extremely discouraging. If getting any form of exercise is a struggle due to mobility issues, watching someone on social media demonstrate “8 easy exercises to tighten that butt” is not appealing nor realistic. Sure, I might want a nice butt, but none of those exercises are doable.

Where might there be motivation to make any changes if your body is already working against you?

This is why looking for the more realistic programs is important. But, the realistic programs get lost in the social media cacophony which leads to the impression that only big changes can be made when we want to commit to self-improvement.

Goals do not need to be huge, they can be as small as taking one step-a-day, or eating 50 calories less, or even saying one positive affirmation to ourselves when we wake up. Goal creation is about starting the process towards self-improvement and allowing it to build on itself. Forward momentum will move you towards greater personal success as time goes by.

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2019: A Year of Self-Improvement

In 2018, I did some reflection on the importance of self-improvement with a chronic illness. It’s something I wanted to do prior to my diagnosis: live my best life and become the person I imagined I would be when I was fifteen. Unfortunately, I allowed myself to get side-tracked in my twenties and it took my diagnosis and becoming a mother to finally realize that I needed to make changes.

Taking the steps toward self-improvement while managing a chronic illness can be overwhelming. Knowing where to begin and what to do was discouraging. Looking around online, I saw wellness challenges, but rarely geared towards someone with a chronic illness

These “regular” challenges were great for someone who didn’t have to fight fatigue, numbness, and the depression that came from coping with an illness. It was hard to make the logical leap to tailor them to my needs. It felt overwhelming to even attempt to do so.

That’s why I wanted to take the opportunity of the new year to create a self-improvement challenge geared specifically for people with a chronic illness. You don’t have to have a chronic illness to join, so if you are just looking to make some small changes in your life at a stress-free pace, this challenge should work nicely for you.

New Year; New You

I always love the new year because it gives me an opportunity, mentally speaking, to view my slate to be clean. To riff on an Anne Shirley’s quote: the new year is always fresh, with no mistakes in it yet.

Many of us make resolutions and vows of how we plan to approach the coming year, though I am notoriously bad about waiting until today to come up with any thoughts on the matter. I decided that I would be more proactive in 2019, so I created a challenge that I would be willing to undertake and share it with my readers.

As you make changes, big & small, so will I. We’ll take this year as an opportunity to improve ourselves together.

The Challenge: Self-Improvement with a Chronic Illness

Dealing with MS and any chronic illness can lead a person to feel stuck and unable to make any meaningful forms of self-improvement. I know that not long after my diagnosis I was dealing with a lot of heavy emotions that I froze for a few years. But deep down I wanted to make some personal improvement changes, though I didn’t know where to begin.

This wellness challenge works within that specific framework: I want to make changes, I am not sure “how to” or “where to” start, but what I am currently doing isn’t working.

For 2019, I am challenging readers to make the self-improvement changes they’ve always wanted to do but were either afraid to start or didn’t know how to start due to a chronic illness.

What the Challenge is…

This Challenge is a gentle way to work on self-improvement no matter the situation. All the mental and emotional exercises, thoughts, anecdotes, and research will be arranged for the user to make meaningful life changes, rather than a quick fix. This challenge also is:

  • judgment-free.
  • accessible no matter your level of fitness, physical abilities, state of your illness, and financial situation. If you want to make changes, you can.
  • free. You will not be paying for any aspect to participate.
  • focused on making positive changes.
  • support-based. There will be a corresponding Facebook group where you can talk directly to me and others participating in the challenge.
  • a chance to make the changes you’ve wanted to make no matter what they are.
  • drop-in/drop-out. If you only want to do a quick short-term goal, we will be working in 3-month chunks of time. If you are coming to this challenge later in the year, then you’ll be able to get a couple of goals done before the end of 2019.

I will provide the framework needed to start you on your journey. This framework will contain the tools you need to easily personalize your own journey to wellness. 

What the Challenge isn’t…

This isn’t a weight-loss challenge. This isn’t a healthy eating challenge. If you want to lose weight or eat healthy, you are welcome to make that your final goal but do not feel like it is the only path to self-improvement. This challenge also isn’t:

  • about making you feel bad about yourself or your goals. Everyone is unique and beautiful and any positive life-change is a good life change.
  • expecting you to follow everything by the letter. I do recommend following as closely as you can, but it’s meant to help you in the best possible way. Only you know yourself best.
  • requiring big life-goal changes. There will be several short-term goals and one long-term goal, but all goals can be as big or as little as you need them to be for the year.
  • going to be easy. While we will be focusing on a gentle approach to each week, there will be moments towards deep, meaningful changes that may be unpleasant to reflect on. You are encouraged to go at the pace best suited to your needs.

As stated, this challenge won’t be easy at times (but why call it a challenge if it was?).  There may be times where you want to give up, but I am going to encourage you to keep going because by December you can reflect over this year with pride.

Making the Most of the Challenge

If you haven’t done so already, please sign up for the weekly newsletter. This is where you will get the weekly challenge updates, writing prompts, free printables, special offers, and all sorts of exciting information I want to share with you, my reader. 

I am reverting back to my 3-day-a-week blog posts, but you’ll only have access to my third post through newsletter subscription, so make sure you sign up so you don’t miss a single post from me.

MS Mommy Blog this Year

You may have noticed that the blog switched from MS//Mommy to MS Mommy Blog. With the new year comes a new look and some slight re-branding. The blog has a new logo and set up, so please check it out if you haven’t had a chance to do so yet.

Looking forward to taking this exciting new journey with you!


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December: A Month of Giving & Compassion

This December…

December is when we open up our hearts for people we know and the strangers we encounter. It can be hard to do so sometimes, but I find for myself, it can be especially rewarding to reach out to others. Seeing Jai exhibit tender moments of caring for people outside of himself is also rewarding and something I want to foster as much as possible.

Throughout this past year, I discussed the importance of generosity and compassion. Rather than re-write what I’ve already written, I am re-sharing some of my favorite posts on these two topics.

At the end of the month, look for my reflection on how I think my 2018 transpired with all the internal and external changes I’ve made.

Introducing the 2019 Newsletter

For 2019, MS Mommy Blog will have a weekly newsletter. I will be switching back to my three posts-a-week schedule, but on Fridays, my third post will appear only in the newsletter. The newsletter will include access to free printables, recipes, fun articles relating to the week’s theme, a 2019 challenge, and other exciting things that I want to share with my readers.

To make sure you don’t miss a thing, sign up for my newsletter below. I promise to only send you one email a week.

Subscribe to the 2019 Newsletter

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Featured photo credit: Michelle Melton