Personal Motivation

MS Awareness Month…Final Thoughts

As we finish up MS Awareness Month I wanted to reflect on some thoughts that came up throughout the month.

I found this month to be deeply meditative because it forced me to confront some unresolved conflicts with my diagnosis. While I’ve moved into the acceptance stage with my MS diagnosis, there was some information that I ignored throughout the denial stage that I resolved this month. I had avoided, up until now, to learn the truth about the minor details.

It also forced me to consider how to have the MS conversation with Jai. While he’s too young to understand what MS is, being prepared to have the conversation will keep it natural and hopefully not overwhelm either of us.

I have been overwhelmed by the response to this month’s most popular post: “The first few days…” I honestly hadn’t expected this post to be popular. It was the hardest post to write, I worked on it for about two weeks because it emotionally put me back in the days right after the diagnosis. Those were some dark days, but I was able to pull them to have brighter days and feel more hopeful about my future.

I am hoping that its popularity meant it resonated with others and will provide some measure of comfort during those darker times.

Overall, this month was a difficult one to blog through because many of the posts required a level of emotional and mental fortitude I hadn’t expected. I poured a lot of myself into these posts and I am deeply grateful for the positive responses I’ve received from my various social media accounts.

But this was a wonderful month, it allowed me to feel connected to the MS community on a deeper level and amazed at all the strong fighters in my ranks. I conquered my third half marathon and have had the opportunity to work with some other extremely talented bloggers. Overall, this month was a success.

And remember, MS can’t catch us.

MM-MSMommy-tshirt-blackandwhite


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Lifestyle & Blogging

March is Multiple Sclerosis Awareness Month

In honor of MS Awareness month and week (March 11-17), MS//Mommy will feature a series on the following topics: raising MS awareness, getting involved, advocating for your health, dealing with an MS diagnosis, parenting with MS, and educational tools for family and strangers.

MS//Mommy blog has a new look for the month, so please stop by to check it out.

 

Raising Awareness on Social Media

I’ve made a series of banners and images that you are free to use to help raise MS awareness. These are free to download for personal use only. For professional use, please contact me.

Please do not remove the msmommy.blog credit on the photo and make sure to credit MS//Mommy in your post. Credit information for each medium found below.

Facebook

Download a Facebook cover photo for the month:

Cover Photo

Be sure to tag the MS//Mommy Facebook page when you use this photo. Don’t forget to check out the page and give it a like to follow for MS stories and relevant articles to blog posts.

If you are a Facebook user, I created this profile frame. Follow the link below to use the frame:

Twitter

Twitter banner:

Twitter Banner

Tweet credit @msmommy16 and use the #msmommyblog

Instagram

Instagram image:

Instagram Photo

Tag and include @msmommyblog in your post description and use the #msmommyblog

Share Your MS Story this Month

If you have an MS story or advice that you would like featured on the MS//Mommy Facebook page, please email me for more information.


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Parenting

Passing Compassion Along

This is the second week in a 3-week series on parenting observations. Week one is based on gentle parenting, week two is about parenting with compassion, and week three is about parenting with a disability.

These posts are based on my personal experiences as a parent and are not meant in any way to judge other parenting styles or decisions. I am offering my personal research and conclusions as possible suggestions for others out there, therefore these posts will be as objective as possible. When it comes to parenting: provided the method isn’t abusive, there really isn’t a wrong way to parent your child. Be secure and do what works best for you and your family and ignore outside judgement.


Incorporating compassion towards yourself and your little one will naturally lead to raising a compassionate child, but there are other ways to work compassion into the daily routine. There are a lot of great suggestions out there from various parenting websites. I’ve pulled a list together of my favorite suggestions that I want to incorporate with Jai as he grows up and as reminders of what I can do on a daily basis for myself.

Nota bene: This post will be using the universal “you/second person” pronouns throughout, so while it may not speak to your experience directly, it may apply to someone else you know.

Compassion is Nurture not Nature

For some children, compassion appears to be inherent, but for most of us it is something that needs to be taught either by adult example or via life lessons. To best ensure a child becomes a compassionate adult, it is important to teach compassion as part of the growing process. Age of the child (or adult) does not matter, it is something that can be trained at any point in life.

Compassion is not fundamental to being human, but the greater compassion (and self-compassion) a person has, the greater their personal success both personally and professionally.  More than self-esteem, teaching compassion will increase a child’s ability to successfully navigate the world. Increased self-esteem is secondary to compassion in most cases, though it follows closely behind.

Therefore, teaching compassion will be helpful in making the world a better place on a macro-level, but on the individual level for your loved one. The world becomes less harsh, not because of rose-colored glasses, but because your little one does not take adversity personally and takes it in stride. When bad things happen, they are viewed as lessons for growth and not personal insults to their being.

Continue reading “Passing Compassion Along”

Lifestyle & Blogging

2017: A Reflection

2017 was a good year for me.

Like many years, it was filled with its ups and downs. If I had to weigh it any particularly way, I would say that it was mostly filled with good times. But as the year closes, it’s important to reflect on the ups and downs to see what lessons the year taught me so I can approach 2018 fully prepared.

The Down Points

  • At the beginning of the year I dealt with a lot of stress with my social media intake. I found that the news and posts I was reading caused me a lot of frustration and took time away from Jai because I would get emotionally worked up. I realized that I had an issue with my internet usage, though I haven’t made many strides to correct that, other than blocking social media temporarily as a form of self-care.
  • I had an Optic Neuritis flare-up in July, and while most of these flare-ups are caused by personal stress, I have no clue where it came from.  I was picking up a project again around that time and perhaps the stress of that caused my flare-up, but I still am not 100% sure of what happened.
  • After dropping sugar, I discovered that I have a sensitivity to sugar cane. When I had some simple syrup in a drink several months ago, I found that I got a massive headache, fatigue, and felt nauseous. It’s rather disappointing to discover that I may not be able to consume normal sugar again. But I suppose it’s a good thing.
  • When I fell off track with my eating habits I found that I feel a little bit heavier, emotionally down, and have a lot more fatigue that is probably MS related. I think that once I do a diet reset and stick to my lifestyle changes, I will feel a lot better and resolve the bloat, depression, and fatigue; proof that food is fuel and what I consume impacts how I feel.

The Positive Points

  • After my flare-up in July, I found out that the brain lesions I previously had disappeared. While I am not sure about the status of the lesions on my spine, I do count the fact that my brain healed itself as a massive second chance I had needed in dealing with MS.
  • In March, my insurance provider reached out to me as a new mother with an accountability program to help get me motivated with improving my health. It was from here that the seeds of change started to form in my mind. The coach I worked with helped got me back into the idea of running, pushing me to do the training for the half-marathon back in October.
  • So far, through all my hard work, I have lost a total of 27 pounds since I started my blog. I am lower than I was in high school, something I never thought I would see again. I am still holding onto the big number from my heaviest weight during pregnancy to now. I am hoping I will reach that goal by March 2018 and announce it here.
  • Watching Jai grow has been an amazing experience. I was looking at some pictures from one year ago and it’s so hard to believe that is the same little boy. He’s laughing, starting to talk, figuring things out, walking all over the place… he is no longer a baby, but a full-fledged toddler.
  • I have made some personal strides in managing my personal stress. Ash and I were discussing it today, while I still get stressed over some stuff, I am light years ahead of where I was last year. I am learning to let things go and not let things bother me the same way as before.

MS//Mommy

I think the biggest change for me this year is having this blog. While I had the accountability coach, I made this my ultimate accountability buddy. If I said I was going to do something here, I made sure to stick with it. If I faltered, I made sure to own up to it as well.

I am grateful for my friend, Lady, for making the suggestion that I create a blog to track my changes. I have always wanted to be a writer, but never really had the confidence in my abilities. This blog provides me with the cathartic outlet to write how I want to with no restrictions. It also appeals to my love of research and compilation.

I am hoping to see this blog grow into something greater, though I am not sure what that will look like yet.

What I’ve Learned

The number one takeaway from 2017 is to “let it all go.” There are plenty of things that do require my worry and concern, but I am realizing that there are plenty of other things that aren’t as important. My priority is my family and my health, and everything else is just extra. Recognizing the difference between the two allows me to let the correct stuff go.

All of this seems cliche, but sometimes it really does take a low-point or a second chance  to get the important moments of self-reflection and accept what they say to us. I didn’t think I could do anything to help manage my disease without medication because I “attempted” to do so in the past.

“Attempted” meaning I didn’t really try very hard. I said I would eat healthy, but I wasn’t actually motivated to make the necessary changes.

But once I realized that I wanted to teach Jai how to be healthy and that I wanted to be around for him (in an active capacity) when he’s older, I decided that I needed to push myself to make the deep, psychological and physiological changes I had wanted to do for so long. Let everything go: mental baggage, physical baggage, emotional baggage.

I feel the healthiest I’ve ever been going into a new year.

Where I Would Like to Be in 2018

  • I want to figure out what foods serve me best and which ones I should avoid indefinitely (or consume on special occasions). I have my suspicions, but I am hoping after spending 6 months away from perceived troublemakers will help provide me with insight of what I should and should not consume. The month of June will be spent testing foods out and seeing how I react to them.
  • I would like to see the entire year without a single flare-up while I am still off of medication. Unless Jai self-weans in 2018, I don’t anticipate starting up Tecfidera just yet. If I can make it the whole year without a flare-up and feeling better without additional medication (amantadine for energy, Ritalin for energy/focus), then I will feel like I have temporarily seized control over my health.
  • Even more relaxed and not stressed out over things. Maintaining the “let it go” attitude, but also beginning to allow myself to feel more comfortable with myself. I haven’t been comfortable being myself for a long time, and since I am taking all these strides to feel better physically, I need to feel better mentally and emotionally. Stop trying to hide my true self in order to please others.
  • Reconsider my internet usage. Working on MS//Mommy is important, but I feel I spend way too much time on my phone outside of that. I’ve already started using the Forest App as a means to keep me off of my phone when Jai is up and about. I will need to consider going on a phone fast at some point during the year to break some bad habits.
  • While I never anticipated losing weight when I started all of this, I now have a weight goal in mind and that’s solidly in the healthy BMI range (+/- some pounds to account for fluctuation). I am just outside the actual range and it’ll be a few pounds more to get me where I want to be. This is low-level goal – so in order to maintain my sanity I am not going to focus as heavily on it.

2018 as a Teaching Opportunity

I think 2018’s motto should be “keep letting it go, no distractions, and push forward.” 2018 is going to bring a lot for me to handle, like any year, but I need to stay focused on not stressing out on stuff but keep moving forward even when the going is tough.

I anticipate hitting numerous walls, which is the norm for any sort of self-reflective/lifestyle change. I need to not let it get to me and keep going even when I feel down. Down days are okay, but what I do with them makes all the difference.

Here’s to a new year.

Happy New Year, everyone. I hope it’s a good one.

Personal Motivation

Be Generous to the Most Important Person: You

At this time of year, life can get overwhelming. There are social, familial, and professional obligations that all demand our full attention. While these demands don’t go away, they do seem more urgent at the end of the calendar year.

It is easy to get caught up in these demands and struggle to prioritize them (and sometimes they don’t allow for reasonable prioritization). It leaves a person feeling frazzled, burnt out, and hating the holiday season.

That isn’t the case for everyone, but I am sure we’ve all had moments in life where we would like to skip straight to January 2nd and move on with our lives.

We’ve run into others who feel this way: try going into a mall around this time of year. I’ll just leave it at that.

Piling on top of the usual life demands are calls for generosity from various organizations at the end of the year. Commercials are filled with pathos-based appeals to get the viewer to donate to various causes. Religious leaders ask their people to open up their wallets and give money, toys, or time to those who are less fortunate. Stories of tragic events lead to calls for donations of food, items, and blood. Passive social pressures increase: social media pages are flooded with posts from others announcing their generosity.

It gets extremely overwhelming.

The issue is, that when we think about the term “generosity” we think about it as giving to others. But look at the definition of the word:

Generosity
nounplural generosities.

1. readiness or liberality in giving.
2. freedom from meanness or smallness of mind or character.

3. a generous act:
   We thanked him for his many generosities.

4. largeness or fullness; amplitude.

Dictionary.com

Nowhere in the definition does it specifically define generosity as an act we give to others. It is an act of giving and love, but with no defined recipient.

When we get caught up in the minutiae we completely forget about the importance of taking care of ourselves. We are told that we should be generous with our time and care for others, but it’s extremely hard to care about another person if we don’t take care of ourselves.

If we care for our own needs first we can be more effective to others. And when everything becomes too overwhelming, we might be able to see through it with less stress and frustration.

The Importance of Self-Care

I saw this quote posted on a friend’s Facebook wall and it was the foundation for this post. I kept the original formatting:

self care isn’t always lush bath bombs and $20 face masks. sometimes, it’s going to bed at 8pm or letting go of a bad friend. it’s forgiving yourself for not meeting your impossible standards & understanding u are worth it. self care isn’t always luxury, but a mean for survival

Cheerful Nihilism

Self-care quotes, personal revelations about self-care, articles expounding self-care all make the rounds on a fairly frequent basis. Some of them connect with us and others we either ignore or go, “yeah, if only it was that easy.”

All the wisdom in the world about self-care/self-generosity does not mean anything if it doesn’t connect with you. And let’s be blunt about the quotes/revelations/articles: they aren’t saying anything new. It’s all steeped in common sense.

We just need them to remind us every so often.

I am not an expert that can espouse pearls of wisdom of how to better take care of yourself, but I do recommend that you be more generous to yourself. Allow yourself to be more selfish.

But this isn’t the same when we think about being selfish. This is a loving selfishness.

Recognize that you need to take care of yourself before you can care for others. The Mayo Clinic recommends that caregivers take care of themselves first before they take care of others. They acknowledge that a person must be selfish if they are going to be an effective long-term caregiver.

Everyone is a caregiver. For some, it’s for another person; for everyone, it’s themselves. We all must care for ourselves.

Continue reading “Be Generous to the Most Important Person: You”